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One in Thousands

Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look “normal” , nobody understands why you can’t BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome.

The author has fought for a “normal” life for 77 years. It didn’t become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment – including the medical world – that was convinced her problems “were all in her head”.

Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations – there are 13 in all – are far more common. You may have heard of people who suffer from one of them. You may even know one.

 

 

167,16 kr.

På lager: På lager

Forfatter: Dorrit Barrett
Varenummer: 9788743030768
Sidetal: 206
Sprog: eng
Format: Paperback
Kategorier: ,

Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look “normal” , nobody understands why you can’t BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome.

The author has fought for a “normal” life for 77 years. It didn’t become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment – including the medical world – that was convinced her problems “were all in her head”.

Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations – there are 13 in all – are far more common. You may have heard of people who suffer from one of them. You may even know one.

 

 

One in Thousands

Forfatter: Dorrit Barrett
SKU: 9788743030768

167,16 kr.

Leveringstid: POD 3-8 dages lev. tid
Kategorier: ,
Format: Paperback
Sprog: eng
Sidetal: 206

Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look “normal” , nobody understands why you can’t BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome.

The author has fought for a “normal” life for 77 years. It didn’t become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment – including the medical world – that was convinced her problems “were all in her head”.

Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations – there are 13 in all – are far more common. You may have heard of people who suffer from one of them. You may even know one.